One issue often overlooked in the psychological management of chronic diseases is the large component of patient-directed care -- a component that requires behavioral change, and which is often conducted in social isolation. Diabetes is one of the most common chronic diseases in modern society -- and one of the most isolating. Thousands of people with diabetes are dealing with these issues by joining diabetes-oriented social networks.
The presentation discussed the role of online communities and social networks as part of the informal social and psychological support network that is helping people with diabetes overcome feelings of social isolation and take a more proactive role in the management of their condition.
Go to the full PowerPoint presentation (some slides may have been skipped during the live presentation).
Check out the slides used for the poster presentation.
Explore diabetes-oriented online communities
Explore related online resources
These communities came up during a search for "diabetes" on Ning and a search for "diabetes social networks" on Google
While most of these discuss professional-based intervention, certain aspects apply to peer-based communities as well.
"Barriers to Effective Diabetes Care Revealed", Diabetes In Control, Issue 462, 3/31/2009. http://www.diabetesincontrol.com/results.php?storyarticle=6598
"Lifestyle Program for Diabetics Improves Mind, Body and Wallet by 87%", Diabetes In Control, Issue 459, 3/10/2009. http://www.diabetesincontrol.com/results.php?storyarticle=6543
"Internet Program Improves Diabetes Self-Care- Clinic Visits Not Sufficent", Diabetes In Control, Issue 459, 3/10/2009. http://www.diabetesincontrol.com/results.php?storyarticle=6533
"DEPLOY: Intervention program decreased 10-year CHD risk for adults with prediabetes", Endocrine Today, posted 3/09/2009. http://www.endocrinetoday.com/view.aspx?rid=37631
Center for Connected Health http://www.connected-health.org/ a program of Partners Health http://www.partners.org, an integrated healthcare system (integrating general, specialized, and online care)
Hernandez, Manny. "The Healing Effect of Social Networks", The Voice, Greater Bay Area, Juvenile Diabetes Research Foundation, Fall 2008. http://www.newsletternet.com/newsletter.asp?clientcode=URZUWAOHTI&issueid=2094&newsid=3&review=
Hernandez, Manny. "Healthcare Innovation Online" panel, Healthcare 2009 Conference, Yale University, 4/3/2009. Presenter comments available online. http://tudiabetes.com/profiles/blogs/spoke-yale-healthcare-2009?id=583967%3ABlogPost%3A552770
Achieving Openness: The Art Of Listening, Learning amp; Communicating With People Using Social Networks For Health & Wellness, Envision Solutions, Inc., http://www.envisionsolutionsnow.com/healthsocnetworks
Pharma 2.0 http://pharma2blog.com/
Health Management Rx http://hmrx.posterous.com/
The Health Engagement Blog http://www.engageinhealth.com/
"Social networking sites changing the way people learn about health", The Lawrence Journal-World, 4/16/2009. http://www2.ljworld.com/news/2009/apr/16/social-networking-sites-changing-way-people-learn-/
"Health 2.0: How far can interactive digital medicine go?", The Economist, 4/16/2009, http://www.economist.com/specialreports/displaystory.cfm?story_id=13437940
The Role of Online Communities in Diabetes Management. August 08, 2011.
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